ERIC Number: ED308673
Record Type: RIE
Publication Date: 1989-Jan
Reference Count: N/A
A Guide to Selected National Genetic Voluntary Organizations.
National Center for Education in Maternal and Child Health, Washington, DC.
The directory lists mutual support groups concerned with the medical and psychosocial impacts of genetic disorders and birth defects on affected individuals and families. Each organization included is dedicated to the ongoing emotional, practical, and financial needs of these populations. Entries are categorized by disorder, including: general, auditory, cancer, cardiovascular, chromosomal, connective tissue, craniofacial, developmental, gastrointestinal, hematologic, immunologic, kidney, mental, metabolic, muskoskeletal, neurologic, neuromuscular, short stature, skin, and visual disorders. Listings are also indexed by subject and organization name. Information provided in the organization listings includes the names of the executive director and a contact person, the chapters or satellites, if any, the purpose, publications, available audiovisuals, and newsletter title and/or frequency. (MSE)
Publication Type: Reference Materials - Directories/Catalogs; Books
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.
Authoring Institution: National Center for Education in Maternal and Child Health, Washington, DC.