ERIC Number: ED305765
Record Type: RIE
Publication Date: 1987-Nov-15
Reference Count: N/A
Home Care for Children with Chronic Illnesses and Severe Disabilities: A Bibliography and Resource Guide.
Wells, Alice; And Others
The bibliography and resource guide summarizes relevant research and information on home care for children with disabilities and chronic illnesses, including those with such diagnoses as spina bifida, cerebral palsy, severe mental retardation, acquired immune deficiency syndrome (AIDS), hemophilia, sickle cell anemia, autism, or failure-to-thrive syndrome. Section I provides a narrative overview of three main themes addressed in the resources listed: (1) the values involved in making home care available; (2) the needs of children and their families; (3) financing issues related to home care. Section II offers a list of published resources, arranged by subtopic areas such as siblings, prevention, financing, federal policy, employer initiatives, case management, conceptual framework, research and evaluation, and policy development. After identifying a specific subtopic and the corresponding list of resources, the reader locates relevant bibliographic summaries in Section III, an alphabetical list of citations with annotations. Four appendices list journals and newsletters focusing on the care of children with chronic illnesses, published directories identifying services nationwide, names and addresses of relevant organizations, and other published bibliographies that relate to children with special health needs. (JW)
Descriptors: Annotated Bibliographies, Children, Chronic Illness, Delivery Systems, Family Environment, Family Financial Resources, Family Programs, Financial Support, Individual Needs, Insurance, Normalization (Handicapped), Public Policy, Severe Disabilities
Human Services Research Institute, 2336 Massachusetts Ave., Cambridge, MA 02140 ($10.00).
Publication Type: Reference Materials - Bibliographies; Guides - General
Education Level: N/A
Sponsor: National Inst. on Disability and Rehabilitation Research (ED/OSERS), Washington, DC.
Authoring Institution: Human Services Research Inst., Cambridge, MA.
Note: Sections 2, 3 and 4 are printed on colored paper.