ERIC Number: ED280255
Record Type: RIE
Publication Date: 1986-Mar
The Rubberband Syndrome: Family Life with a Child with a Disability.
Brower, Deb; Wright, Virginia K.
Extended quotations from informal interviews with eight families focus on the experiences of parents in adjusting to life with a handicapped child. In the first part of this paper, seven interview questions probe the following issues: positive and negative experiences with other people's reactions; most and least helpful actions by others; effects of the child's disability on the family (social, emotional, financial, professional, marital); and type and degree of support offered by the spouse. Subsequent sections present brief quotes from parents organized under the following titles: "Tips for Educators,""Kudos to Educators,""Tips for Parents," and "Attitudes and Sayings to Avoid." Among recommendations for teachers are to treat parents with respect, avoid conversational cliches, and recognize that parents are experts about their children. (JW)
Descriptors: Adjustment (to Environment), Child Rearing, Disabilities, Disability Discrimination, Elementary Secondary Education, Family Life, Family Problems, Family Relationship, Family School Relationship, Helping Relationship, Interviews, Parent Attitudes, Parent School Relationship, Personal Narratives, Preschool Education, Significant Others, Spouses
Publication Type: Opinion Papers
Education Level: N/A
Audience: Practitioners; Teachers
Authoring Institution: Mountain Plains Regional Resource Center, Des Moines, IA.; Iowa State Dept. of Education, Des Moines.; Nebraska State Dept. of Education, Lincoln.