ERIC Number: ED270946
Record Type: RIE
Publication Date: 1986-Feb
Reference Count: 0
The Parent's Role in Health Care: Children with Disabilities and Chronic Illness.
Turnbull, Ann P.
In this paper, by an educator who is also the parent of a son with mental retardation, the urgent needs of families whose children have chronic medical needs in addition to disabilities are discussed. One family's efforts to maintain their severely retarded and disabled son at home are described as an illustration not only of the unsurpassed quality of care that families can provide but also of the need for respite care and other help to such families from outside sources. Among points made in the paper are that quality of health care and quality of life is enhanced when parents are empowered to be primary health care providers; that parents can assume this role cost effectively; that parents need financial support to undertake the effort; that the quality of life for the community is improved as people with disabilities interact with people without disabilities; and that people with extensive health needs as children can grow to become tax-contributing citizens and economic assets to their states. (CL)
Publication Type: Speeches/Meeting Papers; Opinion Papers
Education Level: N/A
Authoring Institution: N/A
Note: Paper presented at the National Governors Association National Early Childhood Conference (Washington, DC, February 6-7, 1986).