ERIC Number: ED268752
Record Type: RIE
Publication Date: 1985
Reference Count: 0
Equals in This Partnership: Parents of Disabled and At-Risk Infants and Toddlers Speak to Professionals.
National Center for Clinical Infant Programs, Washington, DC.
The booklet presents excerpts from a December 1984 conference (Washington, D.C.) on disabled and at-risk infants, toddlers, and their families. Parents' perspectives are offered on care for medically vulnerable infants and children (by the mother of a ventilator-assisted child), services for children with mild developmental delays (by a mother of a premature infant), and the effects on the family of a severely and/or multiply handicapped child. The keynote address explores the emotional needs of parents coping with the birth and life or death of a potentially disabled child and emphasizes the need for emotional support and information. A final paper describes negative assumptions held by professionals about parents' ability to objectively observe, set appropriate goals, and teach their children. (CL)
Descriptors: Emotional Adjustment, Family Problems, Family Programs, Family Relationship, High Risk Persons, Infants, Mild Disabilities, Multiple Disabilities, Parent Attitudes, Parent School Relationship, Young Children
National Center for Maternal and Child Health, Ground Floor, Suite 1, 3520 Prospect St. N.W., Washington, DC 20057 (free).
Publication Type: Collected Works - Proceedings
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.
Authoring Institution: National Center for Clinical Infant Programs, Washington, DC.