ERIC Number: ED266563
Record Type: RIE
Publication Date: 1985-Nov
A Guide to Selected National Genetic Voluntary Organizations.
National Center for Education in Maternal and Child Health, Washington, DC.
The directory lists approximately 120 mutual support groups concerned with the medical and psychological impacts of genetic disorders and birth defects on individuals and their families. The groups are dedicated to serving the ongoing emotional, practical, and financial needs of these populations. The entries are arranged alphabetically and include information on name of organization, address, phone number, executive director, contact person, chapters/satellites, purpose, and educational materials (publications, audiovisuals, newsletters). Among conditions represented are acoustic neuroma, Alzheimer's disease, arthritis, autism, cerebral palsy, cystic fibrosis, Down's syndrome, epilepsy, Friedreich's ataxia, hemophilia, Huntington's disease, hydrocephalus, leukemia, lupus, multiple sclerosis, Parkinson's disease, Prader-Willi syndrome, scoliosis, spina bifida, and Tourette syndrome. (CL)
Publication Type: Reference Materials - Directories/Catalogs
Education Level: N/A
Sponsor: Health Resources and Services Administration (DHHS/PHS), Rockville, MD. Office for Maternal and Child Health Services.
Authoring Institution: National Center for Education in Maternal and Child Health, Washington, DC.