ERIC Number: ED191191
Record Type: RIE
Publication Date: 1980
Reference Count: 0
Learning Together: A Guide for Families with Genetic Disorders.
Health Services Administration (DHEW/PHS), Rockville, MD. Bureau of Community Health Services.
Designed primarily for parents of children with genetic disorders, the booklet provides information about parent groups. Part 1 describes parent groups, including organization, types of groups, and methods of outreach. A sample letter of invitation to attend a parent group and an outline of the initial meeting is included along with a list of three books on the topic of self help organizations. In Part 2, suggested discussion topics are presented and educational, health care, and advocacy activities are described. The final part provides addresses of federal programs working with genetic disorders and organizations concerned with either genetics in general or with a specific condition. (PHR)
Descriptors: Congenital Impairments, Genetics, Guidelines, Parent Associations, Parent Participation, Self Help Programs
Superintendent of Documents, U.S. Government Printing Office, Washington, DC 20402; National Clearinghouse for Human Genetic Diseases, 1776 E. Jefferson St., Rockville, MD 20852
Publication Type: Guides - Non-Classroom; Reference Materials - Directories/Catalogs
Education Level: N/A
Authoring Institution: Health Services Administration (DHEW/PHS), Rockville, MD. Bureau of Community Health Services.