ERIC Number: ED181687
Record Type: Non-Journal
Publication Date: 1979-Sep
Reference Count: N/A
Respite Care: A Survey of State Regulations and Family Options.
Upshur, Carole C.
The findings of a 1978 project of the Massachusetts Developmental Disabilities Council on the need for respite care services and the various models for delivery of respite care are reported. Methodology included review of respite care regulations in 12 states, site visits and a survey of Massachusetts programs, and a survey of 339 families with developmentally disabled members. The project found that respite care is not well developed as a support service to families in any state although recognition of respite care as a necessary community service component is growing. Ten program models for delivery respite care were identified: respite placement agencies, group day care, community residences, residential treatment facilities, group residential care, nursing homes, private in home care, state facilities camperships, and funding conduit. The majority of families (70%), however, reported preferring home based care over other models. Obstacles to respite care identified by families included reluctance to leave their family member with a stranger and lack of knowledge of what types of services were available at what cost leading to the recommendation that more publicity and community education about respite care should be conducted. Problems with quality of care were identified for most program models and recommendations are made for improving services. (Author)
Publication Type: Reports - Research; Reports - Evaluative; Speeches/Meeting Papers
Education Level: N/A
Authoring Institution: N/A
Identifiers - Location: Massachusetts