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ERIC Number: ED160943
Record Type: RIE
Publication Date: 1978
Pages: 21
Abstractor: N/A
Reference Count: 0
Resolution of Misconceptions of Latency and Adolescent Sicklers.
Christy-Levine, Diane
Misconceptions regarding sickle cell disease are qualitatively different among latency age patients as compared to adolescents. The evolution and resolution of these misconceptions determine the effectiveness of self-help programs for sickle cell patients. The Mount Sinai Hospital Sickle Cell Counseling Service is a coordinated center for sickle cell patients in the Hartford area and their families. A group of latency and adolescent sicklers were followed over two years with interviews and serial questionnaires. The results of the study indicate that latency age sicklers perceive themselves as chronically hospital-dependent, anticipating in-patient care with every symptom. The adolescent sickler employs denial of hospital dependency and sees himself as able to avoid in-patient care by preventative health maintenance. Issues such as body image, physical activity, sexuality, specific drugs, transfusion, peer acceptance, risk of death, and family-related guilt are found to evolve in the transition from latency to adolescence. The design of a sickle cell counseling service based on these data is presented. (Author)
Publication Type: Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
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