ERIC Number: ED116439
Record Type: Non-Journal
Publication Date: 1975
Reference Count: N/A
Chronic Disease and Childhood Development: Kidney Disease and Transplantation.
Klein, Susan D.; Simmons, Roberta G.
As part of a larger study of transplantation and chronic disease and the family, 124 children (10-18 years old) who were chronically ill with kidney disease (n=72) or were a year or more post-transplant (n=52) were included in a study focusing on the effects of chronic kidney disease and transplantation on children's psychosocial development. Ss along with their mothers and the "normal sibling" closest in age were interviewed with a survey questionnaire. The major difference revealed between the chronically ill, the transplanted children, and the controls involved body image, specifically satisfaction with looks. Compared to controls, the ill children were significantly less satisfied and the transplanted patients most dissatisfied because of growth retardation and the cushingoid appearance which results from steroid therapy. External ratings of disease severity reported by the physician and mother (including seriousness of condition, number of hospitalizations, and frequency of symptoms) were correlated with various aspects of the self; and in general, objective severity of the disease does seem to have disadvantageous effects, although the tendency to hide one's feelings is most significantly and consistently affected. Findings showed that the child's own perception of the disease as a significant problem seems to have a more pervasive effect on adjustment than objective ratings of disease severity. A set of background demographic factors was investigated, and it was found that variables generally affect sick and normal Ss similarly with urban children having higher self-esteem than rural children. (Author/SB)
Publication Type: Reports - Research
Education Level: N/A
Authoring Institution: Minnesota Univ., Minneapolis.