Individuals with intellectual and developmental disabilities (IDD) and their families face many important decisions as the individuals with IDD enter adulthood, including where to live. Although there are numerous housing options for individuals with IDD outside of institutions, there is a paucity of information available to inform them about how…

This study examined family quality of life (FQOL) of Turkish families who have children with intellectual disabilities (ID) and autism. To research the perceptions of FQOL and relevant predictive relationships, data were gathered from 3,009 families who have children with ID and autism. The data were collected by using a Socio-demographic Family…

There has been a gradual shift from a deficit to a support model for understanding disability over the last two decades. Although more attention is focused on supports at the individual level, policy has provided for the provision of family support. Despite this policy, families' needs for support are on the rise; and research suggests that…

Historically, researchers focused on individuals with severe disabilities have utilized single-subject research methodologies to study the application of the behavioral theory to learning. In contrast, disability studies scholars have primarily used qualitative research methodologies to study quality of life or policy issues related to individuals…

The impact of TASH over the next decade will be affected by decisions about the precision and consistency of the organization's messages to the field. TASH has long been the premier organization extending the voice of individuals with significant developmental disabilities. As TASH examines the themes that will be prominent in the coming years, we…

The emergence of the standards-based reform movement has raised a number of issues related to the design of educational programs for students with severe disabilities, and a debate has arisen that presents an "either/or" choice between the general education curriculum and an ecological curricular framework that has traditionally guided curriculum…

Hunt and McDonnell have provided an excellent overview of one of the most important aspects of planning for students with severe disabilities--an ecological curricular framework that is created with input from the student, family, and needs of current and future environments. The standards-based reform-movement has created tension for educators to…

Although the author has written, conducted research, and lectured about parents of individuals with intellectual and developmental disabilities (IDD) and he is a parent himself, he is not the parent of an individual with a disability. Viewing from the experience of life "without" a child with IDD in it, it is reasonable to assume that there are…

Despite more than 40 years of legislation to improve the outcomes of children and youth with disabilities and those growing up in poverty, vast numbers of adults with severe disabilities are unemployed or underemployed and living in poverty. This article suggests that one of the factors maintaining the problem is our failure to acknowledge the…

Individuals of color with disabilities and/or their family members need access to services and supports that will assist them with daily life and a way to advocate for these services. Disability organizations, whose core mission is advocacy, have had difficulty attracting and maintaining persons of color with disabilities or their family members…

In this article, Keith Storey provides a modest update to his earlier case against the Special Olympics. Several sections have been updated, with some additional consideration of issues related to severe disabilities. The article now includes sections on choice and self-determination and use of taxpayer dollars to fund Special Olympics programs.…

Literacy may be one of the most important instructional areas for enhancing quality of life for all students. One way to promote literacy skills is through engaging students in the shared reading of a story. In this study, methods for planning and implementing shared stories for three students with multiple disabilities was evaluated via a…

Augmentative and Alternative Communication (AAC) practice may have both positive and negative impacts on quality of life (QOL) of children with AAC as well as their entire family. Thirteen studies were reviewed to analyze family outcomes and perspectives on AAC practice by using a family quality of life (FQOL) framework comprised of five…

In recent decades, there have been shifts in the conceptualization of intellectual disability and increased attention has been directed toward the importance of identifying and capitalizing on the strengths and capabilities of people with intellectual disabilities as a means to promote meaningful participation, community inclusion, and quality of…

This article presents the authors' response to Gunther and Diekema's argument about growth attenuation and due process. As a case study, growth attenuation raises complicated issues. The authors address some issues that have not been sufficiently addressed. Those involve family support, assistive technology, constitutional rights to "self," the…