Background: The experiences of older parents of adults with Asperger syndrome have not been explored in the research literature. Method: Four families who had middle-aged offspring with Asperger syndrome were interviewed (3 mothers and 1 couple), and the interviews were analysed using interpretative phenomenological analysis (IPA). Results: Six…

Background: There is a dearth of research on the perspectives of adolescent siblings growing up with a brother or sister with an autism spectrum disorder (ASD). Method: Semistructured interviews were used to elicit the perceptions and experiences of 12 typically developing adolescents with a brother with an ASD. Interpretative phenomenological…

The quality of the work that paid support staff carry out within services for individuals with intellectual disability is clearly crucial to achieving positive quality of life outcomes for service users. Despite this fact, support staff have been relatively neglected as a focus for research within their field. That is not necessarily to say that…

Background: Psychological mechanisms may help to explain the variance observed in parental psychological adjustment in parents of children with intellectual disability (ID). In this study, parental locus of control and its role in relation to maternal psychological well-being was explored. Method: Questionnaires were sent to 91 mothers of children…

Background: In this study, we describe the experience of participating in interactive training (IT) for active support (AS). Staff (N = 58) working with adults with an intellectual disability (ID) received IT on providing effective assistance for participation in daily activities. Method: Semi-structured interviews were conducted with staff (N =…

This paper proposes a model whereby children's behavior problems, parental stress, and parenting behavior are related. It reports evidence that child behavior problems lead to parental stress but finds other model aspects have not been tested in the developmental disability field. Also considered are practical implications integrating research of…