Background: Active support is an effective intervention to support engagement of residents with intellectual disability in group homes. This survey explored resident characteristics of the people supported by organisations implementing active support, the provision of active support, its procedures and systems, and resident engagement in…

Background: Front-line managers of supported accommodation for people with intellectual disability are assumed to have a key role in the realisation of outcomes for service users. Yet, their job has been little researched. A job analysis from Minnesota that identified 142 competencies required of effective front-line managers was used to examine…

Background: Research addressing the experiences of families of adults with Down syndrome and Alzheimer's disease in seeking diagnosis and gaining support is limited. The aim of this study was to gain a greater understanding of these processes by exploring the experiences of families and carers in supporting people with Down syndrome and…

Background: Social inclusion is central to disability policies internationally. The high risk of social exclusion for people with intellectual disability is compounded for those with challenging behaviour. Method: A systematic literature review examined how social inclusion of people with intellectual disability and challenging behaviour has been…

Background: Relationships develop through social interaction and assist with participation and inclusion. Little is known about how relationships develop between people with severe intellectual disability who have limited communication and others. Method: Interactions were observed between 6 adults with severe intellectual disability and paid…

Background: Civil and political participation lies at the core of citizenship. Increasingly, people with intellectual disability are members of disability advisory bodies. This study investigated the political orientations of advisory body members with intellectual disability, their participatory experiences, and the types of support they…

Background: Australia has few policies to support the transition of older people with intellectual disability from employment to retirement. This study aimed to identify the possibilities and barriers to retirement for older employees in supported employment services. Method: Five distinct participant groups discussed retirement in 6 separate…

This paper provides the conceptual foundations for a study funded by the Australian Research Council and industry partners Yooralla and Jewish Care titled "Understanding 'encounter' as a dimension of social inclusion for people with intellectual disability." Since the early 1980s, disability policy has envisioned the social inclusion of people…

Background: The involvement of people with intellectual disability in research is framed as inclusive, denoting their active participation in its processes. However, questions are raised about ownership and control, genuineness of involvement, and the need for honest accounts to develop practice. Such issues are particularly pressing in Australia,…

Background: This study reports on the hospitalisation experiences of older adults with intellectual disability living in group homes. Methods: Grounded dimensional analysis was used to guide data collection and analysis. Group home residents were tracked prospectively over a 3-year period. Interviews were conducted with family, group home, and…

Background: People with severe intellectual disability have limited communication skills, small social networks, and may experience isolation. Little is known about how interactions occur with social network members and the role of social support. Method: An adult with a severe intellectual disability was observed in her daily environments. Her…

Older people with a lifelong disability, such as intellectual disability, face significant barriers to enjoying "active ageing" as they transition into retirement. Active ageing involves enhancement of quality of life through optimising the health, participation, and security of individuals and populations (World Health Organization [WHO], 2002).…

This position statement was developed collaboratively by members of the Annual Roundtable on Intellectual Disability Policy in Victoria. It attempts to set out what people with severe or profound intellectual disability might expect in terms of housing and support if the principles embedded in contemporary disability policy, such as the 2006…

Background: Informal relationships are central to conceptualisations of quality of life. Deinstitutionalisation studies consistently suggest a trend of increased contact with family and friends by people with intellectual disability (ID) following relocation from an institution to the community. In this study, changes in the nature of the informal…

Background: Australian government policy regards people with intellectual disability (ID) as citizens with equal rights, which means that they should have access to the same opportunities as the wider community. Ageing in place is central to aged care policy in Australia for the general population. Method: This paper reviews policy to support the…