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Swaine, Jamie G.; Dababnah, Sarah; Parish, Susan L.; Luken, Karen – Intellectual and Developmental Disabilities, 2013
Women with intellectual disability do not receive cervical and breast cancer screening at the same number as women without disabilities. Numerous barriers to receipt of screening have been reported by individuals with intellectual disability, paid caregivers, nurses, and other medical professionals. This study utilized semi-structured qualitative…
Descriptors: Cancer, Medical Services, Females, Mental Retardation
Parish, Susan L.; Swaine, Jamie G.; Luken, Karen; Rose, Roderick A.; Dababnah, Sarah – Intellectual and Developmental Disabilities, 2012
Women with developmental disabilities are significantly less likely than women without disabilities to receive cervical and breast cancer screening according to clinical guidelines. The reasons for this gap are not understood. The present study examined the extent of women's knowledge about cervical and breast cancer screening, with the intention…
Descriptors: Females, Health Promotion, Developmental Disabilities, Cancer
Magana, Sandra; Parish, Susan L.; Rose, Roderick A.; Timberlake, Maria; Swaine, Jamie G. – Intellectual and Developmental Disabilities, 2012
We examined racial and ethnic disparities in quality of care for children with autism and other developmental disabilities and whether disparities varied for children with autism compared to children with other developmental disabilities. Analyzing data from the National Survey of Children with Special Health Care Needs (N = 4,414), we compared…
Descriptors: Health Needs, Special Health Problems, Autism, Developmental Disabilities
Accuracy of Self-Reported Cervical and Breast Cancer Screening by Women with Intellectual Disability
Son, Esther; Parish, Susan L.; Swaine, Jamie G.; Luken, Karen – American Journal on Intellectual and Developmental Disabilities, 2013
This study examines the accuracy of self-report of cervical and breast cancer screening by women with intellectual disability ("n" ?=? 155). Data from face-to-face interviews and medical records were analyzed. Total agreement, sensitivity, specificity, positive predictive value and negative predictive value were calculated. Total…
Descriptors: Cancer, Screening Tests, Females, Mental Retardation
Parish, Susan L.; Rose, Roderick A.; Swaine, Jamie G.; Dababnah, Sarah; Mayra, Ellen Tracy – American Journal on Intellectual and Developmental Disabilities, 2012
Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income,…
Descriptors: Developmental Disabilities, Income, Poverty, Mothers
Parish, Susan; Magana, Sandra; Rose, Roderick; Timberlake, Maria; Swaine, Jamie G. – American Journal on Intellectual and Developmental Disabilities, 2012
This study examines access to, utilization of, and quality of health care for Latino children with autism and other developmental disabilities. We analyze data from the National Survey of Children with Special Health Care Needs (N = 4,414 children with autism and other developmental disabilities). Compared with White children, Latino children with…
Descriptors: Health Needs, Special Health Problems, Autism, Developmental Disabilities

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