This article examines two methodological issues regarding ways of obtaining and analyzing outcome data for people with intellectual disabilities: (a) self-report and proxy-report data and (b) analysis of population-based data sets. Some people with intellectual disabilities have difficulties with self-reporting due to problems of understanding and…

As more individuals with intellectual/developmental disabilities are physically included in community life, in schools, neighborhoods, jobs, recreation, and congregations, the challenge of going beyond physical inclusion to true social inclusion becomes more apparent. This article summarizes the status of the research about community participation…

This study describes service users with Down syndrome (N = 1,199) and a comparative sample with intellectual and developmental disabilities but not Down syndrome (N = 11,182), drawn from National Core Indicator surveys of adult service users in 25 U.S. states. Individuals with Down syndrome were younger than were individuals without Down syndrome.…

This article examines everyday choices made by 8,892 adults with intellectual and developmental disabilities (IDD) and support-related choices made by 6,179 adults with IDD receiving services from 19 state developmental disabilities program agencies that participated in the 2008-2009 National Core Indicators Project. Controlling for physical and…

Despite acknowledgement that paid caregivers have a significant impact on the lives of people with intellectual disability, the subjective experience of staff gender is rarely considered in research. Qualitative data from a study on the sexual health needs of men and boys with intellectual disability is presented. We designed this study to…

Self-reported satisfaction and sense of well-being were assessed in a sample of 1,885 adults with intellectual and developmental disabilities receiving Medicaid Home and Community Based Services (HCBS) and Intermediate Care Facility (ICF/MR) services in 6 states. Questions dealt with such topics as loneliness, feeling afraid at home and in one's…

This article examines expenditures for a random sample of 1,421 adult Home and Community Based Services (HCBS) and Intermediate Care Facility/Mental Retardation (ICF/MR) recipients in 4 states. The article documents variations in expenditures for individuals with different characteristics and service needs and, controlling for individual…

The authors compare the prevalence of obesity for National Core Indicators (NCI) survey participants with intellectual disability and the general U.S. adult population. In general, adults with intellectual disability did not differ from the general population in prevalence of obesity. For obesity and overweight combined, prevalence was lower for…

Adults with ID/DD live in increasingly small community settings, where the risk of loneliness may be greater. We examined self-reported loneliness among 1,002 individuals with ID/DD from 5 states in relation to community residence size, personal characteristics, social contact, and social climate. One third reported being lonely sometimes and one…

An analysis of data on residential services for people with mental retardation between 1995-1999 found growth in recipients of Commonwealth/State Disability Agreement-funded residential services; a decline in the proportion of people housed in large residential settings; an increase in those served in group homes; and more rapid growth in…

This introductory article discusses major Australian deinstitutionalization initiatives and presents data on trends in institutional living in Australia, the United States, and the United Kingdom. All three countries continue to witness a fall in the institutional population of people with intellectual disability and an increase in community…

A pilot study evaluated the viability of trained co-workers (n=12) providing direct job training and support to 10 individuals with mental retardation. Employment outcomes for consumers with co-worker support were as good as for those with job coach support. Consumers also experienced high levels of involvement with co-workers. (Contains…

Consumer outcomes and recurrent service costs were compared for 31 individuals with disabilities in group homes and 56 individuals living semi-independently in Australia. Participants living semi-independently had significantly less social dissatisfaction, used community facilities more frequently and independently, participated more in domestic…

Describes the development and evaluation of the Choice Questionnaire, an instrument designed to measure the availability of choice to people with intellectual disability. The scale can be administered by interviewing the consumer or may be completed by a knowledgeable proxy. Very satisfactory reliability and validity have been determined.…