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Direct linkSwaine, Jamie G.; Dababnah, Sarah; Parish, Susan L.; Luken, Karen – Intellectual and Developmental Disabilities, 2013
Women with intellectual disability do not receive cervical and breast cancer screening at the same number as women without disabilities. Numerous barriers to receipt of screening have been reported by individuals with intellectual disability, paid caregivers, nurses, and other medical professionals. This study utilized semi-structured qualitative…
Descriptors: Cancer, Medical Services, Females, Mental Retardation
Parish, Susan L.; Swaine, Jamie G.; Luken, Karen; Rose, Roderick A.; Dababnah, Sarah – Intellectual and Developmental Disabilities, 2012
Women with developmental disabilities are significantly less likely than women without disabilities to receive cervical and breast cancer screening according to clinical guidelines. The reasons for this gap are not understood. The present study examined the extent of women's knowledge about cervical and breast cancer screening, with the intention…
Descriptors: Females, Health Promotion, Developmental Disabilities, Cancer
Magana, Sandra; Parish, Susan L.; Rose, Roderick A.; Timberlake, Maria; Swaine, Jamie G. – Intellectual and Developmental Disabilities, 2012
We examined racial and ethnic disparities in quality of care for children with autism and other developmental disabilities and whether disparities varied for children with autism compared to children with other developmental disabilities. Analyzing data from the National Survey of Children with Special Health Care Needs (N = 4,414), we compared…
Descriptors: Health Needs, Special Health Problems, Autism, Developmental Disabilities
Parish, Susan L.; Thomas, Kathleen C.; Rose, Roderick; Kilany, Mona; Shattuck, Paul T. – Intellectual and Developmental Disabilities, 2012
We examined the association between state Medicaid spending for children with disabilities and the financial burden reported by families of children with autism. Child and family data were from the 2005-2006 National Survey of Children with Special Health Care Needs (n = 2,011 insured children with autism). State characteristics were from public…
Descriptors: Health Needs, Special Health Problems, Autism, Expenditures
Accuracy of Self-Reported Cervical and Breast Cancer Screening by Women with Intellectual Disability
Son, Esther; Parish, Susan L.; Swaine, Jamie G.; Luken, Karen – American Journal on Intellectual and Developmental Disabilities, 2013
This study examines the accuracy of self-report of cervical and breast cancer screening by women with intellectual disability ("n" ?=? 155). Data from face-to-face interviews and medical records were analyzed. Total agreement, sensitivity, specificity, positive predictive value and negative predictive value were calculated. Total…
Descriptors: Cancer, Screening Tests, Females, Mental Retardation
Parish, Susan L.; Rose, Roderick A.; Swaine, Jamie G.; Dababnah, Sarah; Mayra, Ellen Tracy – American Journal on Intellectual and Developmental Disabilities, 2012
Understanding the financial well-being of single mothers who care for children with developmental disabilities is important to ensure that public policies can be effectively targeted to support these vulnerable families. The authors analyze data from the Survey of Income and Program Participation to describe income poverty, asset poverty, income,…
Descriptors: Developmental Disabilities, Income, Poverty, Mothers
Parish, Susan L.; Moss, Kathryn; Richman, Erica L. – Intellectual and Developmental Disabilities, 2008
A focus group study was conducted with individuals with developmental disabilities to understand their perspectives on their health status, health promotion behaviors, and health care services they receive. The majority of participants reported good to excellent health, and all had some form of medical insurance. However, participants reported…
Descriptors: Medical Services, Health Needs, Health Promotion, Focus Groups
