Anxiety is known to be common among young adults with autism spectrum disorders (ASD), yet little is known about the nature of their experiences or the strategies they use to live and cope with their reported anxiety. In this qualitative study, we began to address this issue through two focus groups involving 11 young adults with ASD, and 10…

The physical and mental health-related quality of life (QOL) of 89 parents of children with high-functioning autism spectrum disorders (HFASDs) was compared to the health-related QOL of 46 parents of children without disabilities. Parents completed a packet of surveys measuring demographics, parenting stress, coping, resources, and QOL. Results of…

Parents in 16 families of children with autism spectrum disorders or Down syndrome participated in a qualitative study examining family (i.e., all caregivers in the home) belief systems. All families had children who had recently entered elementary school or who were in the early years of high school. As a result of their experiences, families…

A study examined the variables that exacerbated or buffered the impact of child problem behaviors and/or physical differences on 16 Korean mothers and 16 Korean American mothers of children with disabilities. Overall findings from data analyses were consistent with qualitative findings that Korean mothers experienced more difficulties than their…

A study investigated perceptions of friendships faced by five Australian adolescents with Asperger syndrome. Participants struggled to describe their understanding of friendships, but were better able to describe a number of characteristics of peers who would not be friends. The use of masquerading to cope with social deficits is discussed.…

A mother writes of her early years with her son as a single parent and the difficult years with twin younger siblings when she was trying to find a diagnosis and help for her son. Her son is 9 years old now, and she reflects on her experiences. (Author/CR)

The mother of a 13-year-old boy with autism discusses the symptoms of autism from birth through 18 months and 18 through 36 months and her journey out of denial. The dreaded validation of the diagnosis and the support of other parents are addressed. Her husband shares some suggestions for stepfathers. (CR)

The mother of a 10-year-old boy with high functioning autism discusses her shock at the diagnosis, her denial, her feelings of guilt, her sense of isolation, the panic she felt in trying to stay on top of things, her anger, bargaining with herself, and her final feelings of acceptance and hope. (Contains three references.) (CR)

This article discusses the consequences of labeling individuals with high functioning autism and Asperger syndrome. It describes three ways people respond to a diagnosis: with energy and improved confidence, with a retreat into the disability and withdrawal from relationships, and with resentment for being singled out. (Contains three references.)…

A psychologist reflects on the lessons learned in working with children with autism, their families, and their schools: there is no way to predict child development, no child and no family go untouched by the diagnosis, and the feelings that parents have related to an initial diagnosis change over time. (CR)

This study assessed the role of religion in the coping of 45 parents of children with autism. All parents completed a questionnaire and 21 parents were interviewed. Positive religious coping was associated with better religious outcome and greater stress-related growth, whereas negative religious coping was associated with greater depressive…

This article recounts the experiences of a family with a son with autism. Jean-Paul's two sisters, his brother, cousin, grandmother, father, and mother contribute their perspectives. Jean-Paul also speaks for himself. This account traces his life from his early childhood to independent adulthood. (Author/CR)

A father tells about his son with autism, who is now 26 years old, and describes how his son differs from the portrait of autism presented by professionals. The lessons he learned from his son and how his son helped him to become a more loving person are discussed. (Author/CR)

In this article, the mother of a son with autism shares her struggle to get a diagnosis, choose the right treatment, and face an unknown future for her son Luke, now age 5. Her worries about discrimination, neighborhood acceptance, and the effects of Luke's autism on his siblings are discussed. (CR)

In this article, a mother shares her experience of learning that her son has autism. Coping with the diagnosis, along with the stresses of family life, are discussed, including the effect of the diagnosis on her marriage, which ended in divorce. The need to persist is emphasized. (CR)