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Tuffrey-Wijne, Irene; Bernal, Jane; Hollins, Sheila – British Journal of Learning Disabilities, 2008
We have done research about cancer, death and dying. People with learning disabilities who had cancer were in our studies. This paper is about making sure that our research is ethical. This means that we don't want to cause any harm (or make people upset) when we do the research. We ask: (1) How do we find people to be in our studies?; (2) What…
Descriptors: Mental Retardation, Learning Disabilities, Cancer, Ethics
Owen, Katherine; Hubert, Jane; Hollins, Sheila – British Journal of Learning Disabilities, 2008
Previous research into deinstitutionalization has largely ignored the perspective of people with intellectual disabilities, especially those with severe intellectual disabilities. This research aimed first to understand how women with severe intellectual disabilities experienced transition from a locked ward of an old long-stay hospital into other…
Descriptors: Females, Severe Mental Retardation, Hospitals, Ethnography
Jones, Amelia; Tuffrey-Wijne, Irene; Bernal, Jane; Butler, Gary; Hollins, Sheila – British Journal of Learning Disabilities, 2007
This paper reports on one of the findings of a small study that aimed to explore how people with learning disabilities accessed and were supported to use a pictorial cancer information book. Five people with learning disabilities who were affected by cancer and their paid carers participated in the study. Support staff in the study were the people…
Descriptors: Cooperation, Information Needs, Learning Disabilities, Health Needs

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