ERIC Number: EJ790901
Record Type: Journal
Publication Date: 2008-May
Pages: 19
Abstractor: Author
ISBN: N/A
ISSN: ISSN-0895-8017
EISSN: N/A
Perceived Quality of Life in Mothers of Children with Fragile X Syndrome
Wheeler, Anne C.; Skinner, Debra G.; Bailey, Donald B.
American Journal on Mental Retardation, v113 n3 p159-177 May 2008
A mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive.
Descriptors: Mothers, Quality of Life, Child Rearing, Social Environment, Genetics, Disabilities, Attitude Measures, Parent Attitudes, Mental Health, Well Being, Predictor Variables, Personality Traits, Parenting Skills, Stress Variables
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaidd.allenpress.com
Publication Type: Journal Articles; Reports - Evaluative
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A