ERIC Number: ED394779
Record Type: RIE
Publication Date: 1996-Mar
Reference Count: N/A
Rural Families and Early Intervention.
Haring, Kathryn A.; Lovett, David L.
This paper presents findings from a 5-year research project involving 50 primarily rural families with infants identified neonatally in birth crisis, or shortly thereafter, as having developmental disabilities. Parents were interviewed to gather information on their perceptions of and experiences with the early intervention (EI) process. Interviews covered medical evacuation of the newborn and mother-infant separation, medical care, referral to early intervention services, insurance and use of private services, family receipt of welfare services, influence of religious beliefs and other family beliefs and fears, and preschool programs. All of the interviewed families had medical "nightmare" stories of inappropriate medical care and advice. Thirty percent received no prenatal care, had no memory of having received, or had conflicting reports on prenatal care. The results indicate that families of young children with disabilities may vary greatly in their experiences and in their reaction to having a disabled child. They may or may not receive or request EI services that could enhance their child's development. In addition, many eligible families do not access available governmental supports. Resources in rural areas may be inadequate and difficult to access. Professionals must learn to effectively communicate and work with families of children with disabilities. In addition, they must be knowledgeable about available resources that can enhance the young child's development. They must also be effective communicators and collaborators with professionals from other disciplines. Finally, professionals must be sensitive to the unique characteristics, strengths, and needs of each family. This sensitivity is critical if effective EI services are to be provided. (TD)
Publication Type: Reports - Research; Speeches/Meeting Papers
Education Level: N/A
Authoring Institution: N/A
Identifiers: Service Providers
Note: In: Rural Goals 2000: Building Programs That Work; see RC 020 545.