ERIC Number: ED337987
Record Type: RIE
Publication Date: 1991
Reference Count: N/A
Apert, Crouzon and Other Craniosynostosis Syndromes.
Hospital for Sick Children, Toronto (Ontario).
This booklet discusses the impact and treatment of the two craniosynostosis syndromes (Apert and Crouzon), which involve the premature fusion of skull sutures, are usually identified at birth, and require years of treatment. It is noted that children with Apert syndrome may have some degree of mental retardation while children with Crouzon syndrome usually have average intellectual potential but often have specific learning problems. Briefly covered are effects of the syndromes on: hands and feet (Apert syndrome children may not have functional fingers); eyes (usually bulging with reduced vision); hearing (significant loss in 10 to 33 percent of cases); mouth (noticeably malformed palates); speech and language development (frequent problems); and breathing (problems are common). Intervention is discussed in sections on the craniofacial team; surgical treatment of the craniosynostosis; surgical treatment of the midface, hands, and feet; and orthodontic treatment. Other services covered include dental hygiene, speech pathology, psychosocial psychiatry, social work, and education. The booklet ends with a discussion of the child's adjustment to his or her peer group. (DB)
Descriptors: Congenital Impairments, Emotional Adjustment, Foreign Countries, Hearing Impairments, Human Services, Individual Characteristics, Intervention, Mental Retardation, Multiple Disabilities, Neurological Impairments, Peer Acceptance, Physical Disabilities, Special Health Problems, Surgery, Visual Impairments
AboutFace, 99 Crowns Lane, 3rd Floor, Toronto, Ontario M5R 3P4 Canada.
Publication Type: Guides - Non-Classroom
Education Level: N/A
Authoring Institution: Hospital for Sick Children, Toronto (Ontario).
Identifiers: Apert Syndrome; Crouzon Syndrome