ERIC Number: ED334773
Record Type: RIE
Publication Date: 1991-Apr
Reference Count: N/A
Children with Rare Chronic Skin Diseases: Hemangiomas and Epidermolysis Bullosa.
Jones, Sheila Dove; Miller, Cynthia Dieterich
The paper reports on studies involving children having the rare chronic skin diseases of hemangiomas and epidermolysis bullosa (characterized by easy blistering). One study compared the self-concept and psychosocial development of young (mean age 46 months) children (N=19) with hemangiomas with 19 children without hemangiomas. Findings indicated few differences in self-concept or psychosocial development between children with and without hemangioma lesions. A national survey of children with epidermolysis bullosa found that 15.8% were receiving special education assistance under Public Law 94-142, the Education for All Handicapped Children Act with 82% receiving services in regular classes. Environmental accommodations and adaptive devices were used. Although 48% reported no social problems, 32% felt there was some peer rejection as a result of their condition. An investigation into developmental characteristics of five young children (ages 3-6) having mild to severe epidermolysis bullosa found a wide variance in overall developmental status with motor skills delayed in proportion to the severity of the condition. Includes 18 references. (DB)
Publication Type: Speeches/Meeting Papers
Education Level: N/A
Authoring Institution: N/A
Identifiers: Epidermolysis Bullosa; Hemangiomas; Impairment Severity
Note: Paper presented at the Annual Conference of the Council for Exceptional Children (69th, Atlanta, GA, April 1-5, 1991).