ERIC Number: ED331195
Record Type: RIE
Publication Date: 1990-May
Reference Count: 0
Children with Osteogenesis Imperfecta and Their Daily Living. Handicap Research Group Report No. 4.
The study examined aspects of daily living of Swedish children with osteogenesis imperfecta, a mineral deficiency in the skeleton which results in stunted growth and frequent fractures. A questionnaire was administered to 24 families with children under the age of 18 and 3 families were interviewed. The study found the families in great need of support services. Early diagnosis is particularly important to prevent families from being accused of child abuse. Professionals and authorities were found to lack sufficient knowledge about the condition. A need was found for modifications of the children's homes and immediate environments and for suitable handicap aids. Families were found to need both psychosocial support and practical help with modification of the home and obtaining of aids. The report includes a discussion of the daily life and modifications made in the three families interviewed. Four references (not in English). (DB)
Publication Type: Reports - Evaluative
Education Level: N/A
Authoring Institution: University Coll. of Jonkoping (Sweden).
Identifiers: Osteogenesis Imperfecta; Sweden
Note: For a related document, see EC 300 177.