ERIC Number: ED330189
Record Type: RIE
Publication Date: 1990
Reference Count: 0
Johanna and Tommy: Two Preschoolers in Sweden with Brittle Bones.
Millde, Kristina; Brodin, Jane
Information is presented for caregivers of Swedish children with osteogenesis imperfecta (brittle bones) and their families. Approximately five children with brittle bones are born in Sweden annually. Two main types of brittle bone disease have been identified: congenita and tarda. Typical symptoms include numerous and unexpected fractures, bluish colored eyeballs, brittle teeth, protruding rib-cage, small stature, and in some cases, hearing impairment. There are inadequacies in the support that the government provides for families with osteogenesis imperfecta children. Various kinds of support available include rental and home assistance, home adaptation allowance, child care allowance, respite service, transportation assistance, subsidies for drugs and medical care, and technical aids. Habilitation services include toy libraries, preschool and leisure time centers, and the school system. Case studies of two preschool children are presented, based on family interviews, and are illustrated with photographs. A list of four suggested readings and four related readings is included. Brief descriptions of The Society for Disabled Children and Adolescents (Stockholm, Sweden) and WRP (Women Researchers in Play and Disability) International conclude the document. (JDD)
Publication Type: Reports - Descriptive
Education Level: N/A
Audience: Parents; Practitioners
Authoring Institution: N/A
Identifiers: Osteogenesis Imperfecta; Sweden
Note: Translation by Christina McCarthy.